RLS Foundation Board of Directors
The Restless Legs Syndrome (RLS) Foundation Board of Directors is responsible for setting organizational goals and priorities, monitoring fiscal status and planning for the Foundation’s future.
Linda R. Secretan, Secretary
Ronald W. Barrett, PhD,Treasurer
Robert (Bob) Waterman, Jr., Chair Emeritus
Jacquelyn (Jacci) Bainbridge, PharmD
New York, NY
San Francisco, CA
RLS Foundation Scientific and Medical Advisory Board
The Foundation’s Scientific and Medical Advisory Board is responsible for monitoring medical and scientific/research issues, reviewing content of all Foundation publications, reviewing research grant applications,and advising the Board of Directors on issues of medical or scientific interest and importance.
- Christopher J. Earley, MB, BCh, PhD, FRCPI (Johns Hopkins Bayview Medical Center; Baltimore, MD), Chair
- Michael Aschner, MD (Albert Einstein College of Medicine; Bronx, NY)
- Marie-Francoise Chesselet, MD, PhD (University of California; Los Angeles, CA)
- Stefan Clemens, PhD, HdR (East Carolina University, Greenville, NC)
- James R. Connor, PhD, MS (Hershey Medical Center, Pennsylvania State University College of Medicine; Hershey, PA)
- Jeffrey S. Durmer, MD, PhD (Fusion Health; Johns Creek, GA)
- Sergi Ferré, MD, PhD (Integrative Neurobiology Section National Institute on Drug Abuse
IRP, NIH, DHHS; Baltimore, MD)
- Jennifer G. Hensley, EdD, CNM, WHNP, LCCE (Vanderbilt University; Nashville, TN)
- Byron C. Jones, PhD (University of Tennessee Health Science Center; Memphis, TN)
- Brian Koo, MD (Yale Center for Sleep Medicine; New Haven, CT)
- Mauro Manconi, MD, PhD (Sleep and Epilepsy Center; Civical Hospital Neurocenter of Southern Switzerland)
- Mark P. Mattson, PhD (National Institute on Aging; Baltimore, MD)
- Emmanuel J. Mignot, MD, PhD (Stanford University School of Medicine; Stanford, CA)
- William Ondo, MD (Houston Methodist Neurological Institute; Houston, TX)
- Michael H. Silber, MB, ChB (Mayo Clinic, Rochester, MN)
- Lynn Marie Trotti, MD, MSc (Emory Sleep Center; Atlanta, GA)
- George Uhl, MD, PhD (New Mexico VA Healthcare System; Albuquerque, NM)
- Arthur S. Walters, MD (Vanderbilt University School of Medicine; Nashville, TN)
- John W. Winkelman, MD, PhD (Harvard Medical School; Boston, MA)
Meet the Scientific and Medical Advisory Board
Christopher J. Earley, MB, BCh, PhD, FRCPI, Chair
Johns Hopkins Bayview Medical Center; Baltimore, MD
Dr. Earley is a Professor of Neurology at Johns Hopkins School of Medicine, where he also co-director of the Johns Hopkins Center for Restless Legs, a certified RLS Quality Care Center. Dr. Earley is board certified in internal medicine, neurology and sleep medicine. Dr. Earley's research interests include RLS and sleep medicine, specifically the pathophysiology of RLS and revealing the value of various treatments. He is chair of the RLS Foundation’s combined Scientific and Medical Advisory Board (SMAB) and an active member of the Foundation's Research Grant Committee.
Albert Einstein College of Medicine; Bronx, NY
At the Albert Einstein College of Medicine, Aschner is a professor in the Department of Molecular Pharmacology, the Dominick P. Purpura Department of Neuroscience, and the Department of Pediatrics. Additionally, he serves as the Harold & Muriel Block Chair in the Department of Molecular Pharmacology, and is director of the Einstein Center of Toxicology. Aschner's research focuses on the interaction between genetics and the environment in triggering disease both during central nervous system development and senescence, and has been awarded multiple research grants from the NIH. At the RLS Foundation, Aschner serves as a member of the Research Grant Committee.
Marie-Francoise Chesselet, MD, PhD
University of California; Los Angeles, CA
Chesselet is the Charles H. Markham Professor of Neurology and Distinguished Professor of Neurology and Neurobiology at UCLA. Chesselet is a member of numerous scientific advisory boards, including the Hereditary Disease Foundation, the Michael J. Fox Foundation and the American Parkinson's Disease Association. Chesselet's research focuses on Parkinson's and Huntington's diseases, specifically the identification of molecular mechanisms of disease and the preclinical testing of potential neuroprotective treatments. At the RLS Foundation, Chesselet serves as chair of the Research Grant Committee.
East Carolina University, Greenville, NC
Dr. Clemens is an Associate Professor in the Department of Physiology at the Brody School of Medicine at East Carolina University. His research focuses on investigating the neural networks in the spinal cord, especially their role in neurological disorders, like RLS. He studies the role of dopamine in the spinal cord, and how the interactions between its different receptor subtypes may play a role in augmentation. At the Foundation, Dr. Clemens is an active member of the Research Grant Committee.
Hershey Medical Center, Pennsylvania State University College of Medicine; Hershey, PA
Connor is a distinguished professor of neurosurgery, neural and behavioral sciences and pediatrics at The Pennsylvania College of Medicine. He also serves as the vice chair of neurosurgery research at the university, as well as the director for the Center for Aging and Neurodegenerative Diseases.
His primary areas of research focus on understanding the cellular and molecular mechanisms by which cells regulate their iron status.
Connor is an active member of the Brain Bank and Research Grant Committees.
Jeffrey S. Durmer, MD, PhD
Fusion Health; Johns Creek, GA
Dr. Durmer is an adjunct professor at Georgia State University and the co-founder and Chief Medical Officer of FusionHealth, a healthcare workflow technology company dedicated to providing solutions for people with sleep disorders and sleep problems. Dr. Durmer's current work focuses on applying the neuroscience of sleep and circadian rhythm biology to workplace fatigue and well-being programs, as well as the use of technology enabled population sleep-health delivery systems. His past research spans from uncovering subcortical visual systems involved in blind sight, to developing the first standardized clinical interview tool for pediatric Restless Legs Syndrome. He served on the Medical Advisory Board of the RLS Foundation from 2006-2012, and currently serves as a member of the Pediatrics Committee.
Integrative Neurobiology Section National Institute on Drug Abuse
IRP, NIH, DHHS; Baltimore, MD
Ferré is chief of the Integrative Neurobiology Section at the National Institute on Drug Abuse, IRP, NIH. He has been funded by the Foundation's invigorated RLS Research Grant Program, where he researched cortico-striatal transmission in iron-deficient rats as a model for the screening of drugs potentially useful in the treatment of RLS. Ferré's research interests focus on the role of neurotransmitter receptor heteromers as targets for drug development in neuropsychiatric disorders, including substance use disorders. At the Foundation, he serves as a member of the Research Grant Committee.
Jennifer G. Hensley, EdD, CNM, WHNP, LCCE
Vanderbilt University; Nashville, TN
Hensley is as an associate professor at Vanderbilt University in the School of Nursing where she teaches nurse-midwifery and women's health. She participates in research in the Neurology Department Sleep Clinic at the Vanderbilt University Medical Center, where one of the prestigious RLS Quality Care Centers is housed. Hensley's primary focus is on sleep disorders in women, particularly those with RLS and insomnia. She is an active member of the RLS Foundation's Medical Bulletin Committee.
University of Tennessee Health Science Center; Memphis, TN
Jones is a professor of genetics, genomics, and informatics at the University of Tennessee Health Science Center, where he also serves as a member of the university's Neuroscience Institute. At Pennsylvania State University, Jones is a Professor Emeritus in behavioral health. His research interests include:
- Response to chronic and acute stress in adaptation and alcohol consumption
- Toxiogenetics of pesticides and neurotoxins
- Genetics of metal regulation in the brain (copper, iron and zinc)
At the RLS Foundation, Jones is an active member of the Research Grant Committee.
Yale Center for Sleep Medicine; New Haven, CT
Koo is the director for the Yale Center for Restless Legs Syndrome, an RLS Foundation sponsored RLS Quality Care Center, as well as the chief medical director of Sleep Medicine at the Connecticut Veterans Affairs Healthcare System. Koo is an assistant professor of neurology at Yale University, and has been an active member of tasks forces and section committees related to the sleep-related movement disorders in the American Academy of Sleep Medicine. At the RLS Foundation, he serves as chair for both the Brain Bank Committee and the Medical Bulletin Committee. Koo is board certified in both neurology and sleep medicine, and much of his research lies in those categories. His research on RLS and PLMS has included animal modeling, epidemiology and human genetics.
Sleep and Epilepsy Center; Civical Hospital Neurocenter of Southern Switzerland
Manconi is director of the Sleep Center, Neurocenter of Southern Switzerland, a certified RLS Quality Care Center. He also teaches at the Master School of Medicine at Bern University, the Institute of Communication and Health at the Italian Swiss University of Lugano (USI), as well as at the Professional University School of Italian Switzerland (SUPSI). Manconi's research focuses on sleep disorders, specifically sleep-related movement disorders like RLS and PLMS, and he currently serves on the scientific board of the European Restless Legs Syndrome Study Group (RLSSG). At the RLS Foundation, Manconi is an active member of the Medical Bulletin Committee
National Institute on Aging; Baltimore, MD
Mattson is chief of the Laboratory of Neurosciences at the National Institute on Aging in the Intramural Research Program. He also teaches at Johns Hopkins University as a professor of neuroscience. Mattson's research focuses on the cellular and molecular mechanisms underlying neuronal plasticity and neurodegenerative disorders. He has made tremendous strides in the understanding, prevention and treatment of Alzheimer's disease, Parkinson's disease, amyotrophic lateral sclerosis and stroke. Currently, Mattson is an active member of the Foundation's Research Grant Committee.
Emmanuel J. Mignot, MD, PhD
Stanford University School of Medicine; Stanford, CA
Mignot is a professor of Psychiatry and Behavioral Sciences as Stanford University, and serves as director of the Stanford Center for Sleep Sciences and Medicine. He is credited with discovering the cause of narcolepsy. Mignot's research focuses on neurobiology, genetics and immunology of narcolepsy. He is also interested in the neuroimmunology of other brain disorders, and the web-based assessments of sleep disorders, computer-based processing of polysomnography and outcomes research. At the RLS Foundation, Mignot currently serves as a member of the Research Grant Committee.
Houston Methodist Neurological Institute; Houston, TX
Ondo serves as director of the Movement Disorder Clinic at the Houston Methodist Neurological Institute, a certified RLS Quality Care Center. Throughout his career, Ondo has written more than 250 articles and book chapters. A movement disorder specialist, he is board certified in adult neurology and sleep medicine. Ondo's research specializes in Parkinson's disease, essential tremors, the use of botulinum toxins in treating movement disorders, and restless legs syndrome. At the RLS Foundation, Ondo is an active member of the Opiates Committee.
Michael H. Silber, MB, ChB
Mayo Clinic, Rochester, MN
Silber is a board certified neurologist and sleep specialist at the Center for Sleep Medicine at the Mayo Clinic, Rochester MN, an RLS Quality Care Center. He also serves as a professor of neurology in the Mayo Clinic College of Medicine.
At the RLS Foundation, Silber is current chair of the Opiates Committee. With a particular focus in neurology, Silber's areas of research include:
- Relationship of REM sleep behavior disorder to neurodegenerative diseases
- Drug management and predisposing factors related to restless legs syndrome
- Epidemiology and pathogenesis of narcolepsy with special reference to the hypocretin system
Lynn Marie Trotti, MD, MSc
Emory Sleep Center; Atlanta, GA
Dr. Trotti is an Associate Professor of neurology at Emory University School of Medicine and is the RLS Quality Care Center director at the Emory Sleep Center. She is board-certified in neurology (since 2008) and sleep medicine (since 2009). In addition to her clinical and research interests in RLS, Dr. Trotti’s work focuses on the central disorders of hypersomnolence and the overlap between sleep and movement disorders such as Parkinson’s disease. Clinically, she treats patients with the full range of sleep disorders. She currently writes the “In the News” column for the RLS Foundation’s magazine, NightWalkers, and serves as an active member of the Foundation's Quality Care Center and Medical Bulletin committees.
New Mexico VA Healthcare System; Albuquerque, NM
Board certified in neurology -- with a PhD in neuropharmacology and with substantial contributions to clinical trials, human genetics, mouse genetics, neuropharmacology and in vitro studies -- Uhl now manages a research program based at the New Mexico VA Healthcare System and his own laboratory and translational/clinical research. He has long studied the mu opiate receptor, at which several RLS drugs work, and the RLS gene PTPRD, for which he has discovered novel ligands. Dr Uhl also has experience in addiction and Parkinson’s disease. Uhl's major research interests include:
- Translational studies of complex genetics of RLS and other brain disorders
- Mechanisms of RLS, addictions and Parkinson’s disease
- Discovery of novel therapeutic approaches to RLS, addictions and Parkinsons disease
At the Foundation, Uhl is a member of the Research Grant Committee and Board.
Vanderbilt University School of Medicine; Nashville, TN
Walters works at the Vanderbilt University School of Medicine, where he is a certified healthcare provider at the Vanderbilt University Medical Center, an RLS Quality Care Center. Throughout his career, Walters has focused his research on sleep-related movement disorders. Additionally, as the founder and first chair of the International Restless Legs Syndrome Study Group, Walters helped establish the universal clinical criteria for the diagnosis of RLS. Walters has played an integral role in the history of the Foundation. From 1992-1998, he helped found and served as the first chair of the Foundation's Scientific and Medical Advisory Board, and went on to hold a place on the Board for many years. Additionally, Walters was a key player in establishing and validating the first scale to be used for the measurement of RLS severity, a scale that is now the most widely used for measuring RLS severity in both academic and industry sponsored studies. Walters is currently serving as chair of the Foundation's Pediatrics Committee, and is also a member of the Opiates Committee.
John W. Winkelman, MD, PhD
Harvard Medical School; Boston, MA
Board certified in both psychiatry and sleep medicine, Winkelman treats patients at Massachusetts General Hospital. He specializes in RLS, insomnia, sleep apnea, sleep-related eating disorders and parasomnias. Winkelman's research primarily focuses on:
- Epidemiology, physiology, cardiovascular consequences and the treatment of RLS
- Neurobiology and treatment of insomnia
Winkelman serves as chair of the American Academy of Neurology Practice Parameter Committee for the treatment of RLS. At the RLS Foundation, Winkelman is an active member of the Opiates Committee.