RLS and Sleep-Related Resources

The RLS Foundation often refers to other organizations within the pages of NightWalkers, our acclaimed quarterly magazine. We sometimes partner with related organizations and groups. Below is a listing of some related links you may find useful in your study of RLS.

 

Professional Organizations

• American Academy of Sleep Medicine The American Academy of Sleep Medicine (AASM) is a professional membership organization dedicated to the advancement of sleep medicine and related research. The Academy's mission is to assure quality care for patients with sleep disorders, promote the advancement of sleep research and provide public and professional education.
• American Sleep Apnea Association The American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness. The ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.
• International RLS Study Group The International Restless Legs Syndrome Study Group (IRLSSG) represents an organization of professionals committed to advancing basic and clinical research on RLS. This includes the cooperative planning, implementation, analysis, and reporting of multi-center studies with an international emphasis.
• The Movement Disorder Society The Movement Disorder Society is an international professional society invested in the research and care of patients with Movement Disorders, including Parkinson’s disease, Parkinsonism, Dystonia, Chorea, Huntington’s disease, Ataxia, Tremor, Myoclonus, Startle, Tics, Tourette syndrome, restless legs syndrome and gait disorders.

Sleep-Related Non-Profits

• Project Sleep Project Sleep is a 501(c)(3) non-profit organization dedicated to raising awareness about sleep health, sleep equity, and sleep disorders.
• Circadian Sleep Disorders Network The Circadian Sleep Disorders Network is a non-profit organization seeking to raise awareness and promote accommodation for circadian sleep disorders such as Delayed Sleep Phase Disorder and Non-24-Hour Sleep-Wake Disorder.
• Narcolepsy Network, Inc. Narcolepsy Network is a national non-profit organization founded in 1986. Its primary focus is to improve the lives of those with the life-long neurological sleep disorder, narcolepsy.
• National Sleep Foundation. The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.  See the NSF 2015 Sleep in America^TM poll results.
• Wake Up Narcolepsy Wake Up Narcolepsy is a nonprofit organization dedicated to speeding narcolepsy diagnosis through greater awareness and funding medical research to find a cure.

Brain Donation for RLS Research

• Harvard Brain Tissue Resource Center The mission of the Harvard Brain Tissue Resource Center (HBTRC) is to advance research on the human brain and disorders of the nervous system, such as neurological, neurodevelopmental and psychiatric conditions
• Brain Donor Project The Brain Donor Project aims to increase brain donation to advance science, leading to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. Their goal is to increase awareness for and simplify the process of brain donation.

International Support

While the RLS Foundation is the only organization in the United States supporting restless legs syndrome, we are not the only group in the world. See our list of International RLS Groups to find an organization near you.