Related Links

The Willis-Ekbom Disease Foundation often lists links to other organizations within the pages of NightWalkers, as well as partners with related organizations and groups. Below is a listing of some related links you may find useful in your study of WED/RLS.

Sleep & International links

While the WED Foundation is the only organization in the United States supporting WED/RLS, we are not the only group in the world. See our list of International RLS Groups to find an organization near you.

In addition, there are other organizations in the United States that are in some fashion associated with WED/RLS. Here are some of those organizations:

  • American Academy of Sleep Medicine.The American Academy of Sleep Medicine (AASM) is a professional membership organization dedicated to the advancement of sleep medicine and related research. The Academy's mission is to assure quality care for patients with sleep disorders, promote the advancement of sleep research and provide public and professional education.
  • American Sleep Apnea Association. The American Sleep Apnea Association is dedicated to reducing injury, disability, and death from sleep apnea and to enhancing the well-being of those affected by this common disorder. The ASAA promotes education and awareness. The ASAA A.W.A.K.E. Network of voluntary mutual support groups, research, and continuous improvement of care.
  • Circadian Sleep Disorders Network. The Circadian Sleep Disorders Network is a non-profit organization seeking to raise awareness and promote accommodation for circadian sleep disorders such as Delayed Sleep Phase Disorder and Non-24-Hour Sleep-Wake Disorder.
  • International RLS Study Group. The International Restless Legs Syndrome Study Group (IRLSSG) represents an organization of professionals committed to advancing basic and clinical research on WED/RLS. This includes the cooperative planning, implementation, analysis, and reporting of multi-center studies with an international emphasis.
  • The Movement Disorder Society The Movement Disorder Society is an international professional society invested in the research and care of patients with Movement Disorders, including Parkinson’s disease, Parkinsonism, Dystonia, Chorea, Huntington’s disease, Ataxia, Tremor, Myoclonus, Startle, Tics, Tourette syndrome, Willis-Ekbom disease (restless legs syndrome) and gait disorders.
  • Narcolepsy Network, Inc. Narcolepsy Network is a national non-profit organization founded in 1986. Its primary focus is to improve the lives of those with the life-long neurological sleep disorder, narcolepsy.
  • National Institutes of Health. The National Institutes of Health is the steward of medical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.
  • National Institute of Neurological Disorders and Stroke. The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
  • National Sleep Foundation. The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.

Other Organizations

  • Center for Information and Study on Clinical Research Participation (CISCRP): A first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.
  • Center on Medical Record Rights and Privacy: Based at Georgetown University's Health Policy Institute, a non-partisan multi-disciplinary group of faculty and staff dedicated to conducting research on key issues in health policy and health services research, the Center is dedicated to raising public awareness of the rights and responsibilities associated with medical records and other health information.
  • CenterWatch:  The leading publisher of information on clinical research for patients and their advocates, to provide easier access to Willis-Ekbom disease, also known as restless legs syndrome or WED/RLS, clinical trials information with this search tool, increasing awareness about investigational treatments available.
  • Dana Alliance for Brain Initiatives: A private philanthropic organization that supports brain research through grants and educates the public about the successes and potential of brain research. Produces free publications; coordinates the International Brain Awareness Week campaign; supports the Dana Alliances, a network of neuroscientists; and maintains www.dana.org.
  • FDA Press Releases: The U.S. Department of Health & Human Services provides an FDA (Food & Drug Administration) press release page.
  • Fibromyalgia Network: Keeps you current on fibromyalgia treatments, coping tips, and research.
  • Harvard Brain Tissue Resource Center: Located at McLean Hospital as a centralized resource for the collection and distribution of human brain specimens for brain research. Postmortem human brain research has played a significant role in the development of a genetic testing and neurochemical and anatomical studies focusing on brain disorders.
  • Mayo Clinic.com: More than 3,300 physicians, scientists and researchers from Mayo Clinic share their expertise to empower you to manage your health.
  • NCCAM: The National Institute of Health has a specific focus on complimentary and alternative medicine.
  • National Fibromyalgia Association: A 501(c) 3 nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
  • National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC): An information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health (NIH), which is part of the U.S. Department of Health and Human Services.
  • National Parkinson Foundation: The mission of the National Parkinson Foundation is to improve the quality of care for people with Parkinson’s disease through research, education and outreach.
  • Parkinson’s Disease Foundation: PDF is working for the nearly one million people in the US who live with Parkinson’s disease (PD) by funding promising research to find the causes of and a cure for PD while supporting people with Parkinson’s, their families and caregivers through educational programs and support services.
  • WebMD: Provides valuable health information, tools for managing your health, and support to those who seek information.