About the RLS Foundation
November 2014 Board Of Directors Meeting, Boston
Pictured left to right: Zibby Crawford (staff), Linda Secretan, Lew Phelps, Jacci Bainbridge, Bob Waterman,
Michael Zigmond, Regis Langelier, Faith Duncan (staff), Michael Brownstein, Karla Dzienkowski (ED)
The Restless Legs Syndrome Foundation began in 1989 when eight people with restless legs syndrome or RLS, began sharing letters and discussing their “rare” condition. In 1992, the Foundation was incorporated as a nonprofit organization to address the growing need for research and information about this unknown condition. In the beginning, the Board of Directors would gather around the kitchen table of Executive Director Pickett Guthrie (now a former member of the Board of Directors) to discuss their experiences with the disease and what courses of action would provide the most relief for persons with RLS. Their goals were simple and yet groundbreaking: increase awareness, improve treatments, and, through research, find a cure.
Today those goals have taken on a life of their own. The Foundation has grown from a simple volunteer staff to a staff of three employees in their Austin, Texas location. Our understanding of RLS has also grown. We now know that the condition is not rare at all. In fact, recent research suggests that up to 7-8 percent of the general population has this neurologic condition. It is perhaps the most common condition you have never heard of, affecting more people than even type 2 diabetes.
Since its inception, the Foundation has been working tirelessly to increase awareness of this disease by raising its profile and educating the public and medical communities alike. The RLS Foundation is spreading the word about RLS -- a serious, yet treatable condition with a very significant impact on quality of life. By educating healthcare providers about RLS symptoms, diagnosis, and treatment, the RLS Foundation helps patients receive the quality care they both need and deserve.
The Foundation continually strives to be the most reputable source of information on RLS. Our renowned Scientific and Medical Advisory Board, composed of leading RLS experts from all over the world, has written several publications on the diagnosis and treatment of RLS. These include our comprehensive RLS Medical Bulletin, our patient brochure, and our brochures on special topics including concerns for surgery, depression, pregnancy, and children.
Through Research, Find a Cure
The Foundation has taken giant strides to further RLS research, funding grants for over 40 research projects to date.
Join the Fight!
The Foundation has only been able to achieve these remarkable feats because of strong support from members, corporate partners, and interested persons like you. We need your help to continue the fight to fund research to find a cure, continue to improve the treatments of RLS, and continue to increase awareness. To join us in the fight for RLS, just click here!
To read reviews on the Foundation or submit a review on the services received from the Foundation, please click here.
Thank you for your support!
About restless legs syndrome
If you have restless legs syndrome (RLS), you are not alone. Up to 7-8% of the U.S. population may have RLS. Many people have a mild form of the disorder, but RLS severely affects the lives of millions of individuals. Spend some time on our website to discover how the RLS Foundation can help you in your own personal RLS journey.
Questions for the Foundation? Please call us at (512) 366-9109 or email us at firstname.lastname@example.org.